نتایج جستجو برای: registry
تعداد نتایج: 44734 فیلتر نتایج به سال:
issues related to data collection and registry configuration. When designing a disease registry, it is important to consider the registry’s purpose and target population as this will influence the type of data, source(s) of data, and the manner in which it is collected. A data dictionary defining the specific data elements to be collected is key to ensuring registry data quality. Compliance of ...
The 2004 Ministerial Summit on Health Research called on the World Health Organization to to establish a registry network with the intention of providing a single access point to identify trials. In 2007 the International Committee of Medical Journal Editors amended their support of this initiative stating that only trials registered prospectively on a member registry of the WHO's Network of Pr...
BACKGROUND EUROCAT is a network of population-based congenital anomaly registries providing standardized epidemiologic information on congenital anomalies in Europe. There are three types of EUROCAT membership: full, associate, or affiliate. Full member registries send individual records of all congenital anomalies covered by their region. Associate members transmit aggregate case counts for ea...
In this paper we present the architecture of a Financial Information Gathering Infrastructure (FIGI). FIGI helps investors collect, lter, combine and integrate portfolio-related information provided through various Internet services like WorldWide Web sites and Web-databases. FIGI is being developed with Java-based Mobile Agent technology by Mitsubishi Electric Information Technology Center. Th...
Our objective was to evaluate the completeness of the United States National ALS Registry (Registry). We compared persons with ALS who were passively identified by the Registry with those actively identified in the State and Metropolitan Area ALS Surveillance project. Cases in the two projects were matched using a combination of identifiers, including, partial social security number, name, date...
BACKGROUND Population-based electronic immunization registries create the possibility of using registry data to conduct vaccine effectiveness studies which could have methodological advantages over traditional observational studies. For study validity, the base population would have to be clearly defined and the immunization status of members of the population accurately recorded in the registr...
This paper discusses the basic principles of data-sharing as defined in the Basic Registry Act, No. 111/2009 Coll. Basic registers of public administration should become a new source of data for public authorities and for private entities. Authors describe the architecture of the basic registers’ system and discuss some possible technical solutions for each of the four basic registries (Registr...
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