The purpose of this article is to describe managerial guidelines to support parents with the hospitalisation of their child in a private paediatric unit. The hospitalisation of a child is regarded as a major stressor for both parents and child. The role of the family in participating in a child's illness is slowly being recognised (Kibel & Wagstaff 2001:544), but the South African government pe...

Purpose: The purpose of this study was to understand smartphone use guidance experiences parents elementary school students.Methods: Qualitative data were collected from 10 students through individual in-depth interview January 2022 February 2022. Collected analyzed using the Colaizzi’s phenomenological method.Results: following four categories derived interviews: ‘Ambivalence on children's use...

OBJECTIVE The objective of this study was to describe the experiences of parents who have children with chronic kidney disease. METHODS We conducted a systematic review and meta-ethnography of studies that had used in-depth interviews or focus groups to explore experiences of parents with children who have chronic kidney disease (predialysis, hemodialysis, peritoneal dialysis, or after kidney...

INTRODUCTION Newborn screening (NBS) techniques have been developed for several lysosomal storage disorders (LSDs), including Mucopolysaccharidosis type I (MPS I). MPS I is an LSD with a wide phenotypic spectrum that ranges from the severe Hurler phenotype to the attenuated Scheie phenotype. To improve the ethical discussion about NBS for MPS I, we performed an interview study to explore the ex...

Ljungman, L. 2016. Parents of Children with Cancer: Psychological Long-Term Consequences and Development of a Psychological Treatment for Parents of Survivors. Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine 1273. 65 pp. Uppsala: Acta Universitatis Upsaliensis. ISBN 978-91-554-9745-3. The aims of this thesis were to increase the knowledge about the long-ter...