This present paper describes the general characteristics, objectives and organizational aspects of the respiratory disease registries in Spain with the aim to report their activities and increase their diffusion. The document compiles information on the following registries: the Spanish Registry of Patients with Alpha-1 Antitrypsin Deficiency, Spanish Registry of Bronchiectasis, International R...

BACKGROUND This study compares registry and non-registry approaches to linking 2006 Census of Population data for Manitoba and Ontario to hospital data from the Discharge Abstract Database (DAD). DATA AND METHODS Using a probabilistic linkage, the registry approach linked the census data to provincial health insurance registries, followed by a deterministic linkage to the DAD based on health ...

This paper proposed dynamic load balancing for Grid systems in order to quickly render information to consumer requests. The proposed algorithm is based on migration the requests from Registry to failover registry if there are overloaded at Registry or Registry is failed. The new point in this algorithm is that the tasks will be ordered in ready queue of Registry or failover registry depending ...

BACKGROUND AND PURPOSE Recent reports on developer bias in unicondylar knee arthroplasty led to concerns about quality of publications regarding knee implants. We therefore compared revision rates of registry and non-registry studies from the beginning of knee arthroplasty up to the present. We assessed the time interval between market introduction of an implant and emergence of reliable data i...

ILD PAK registry is an ongoing web based registry, the governance of which is under the auspices of the Pakistan Chest Society (PCS). In the PCS Biennial Conference 2014 ILD session, the registry web interface was introduced and an open invitation was given to all institutions and pulmonologists across the country, interested in research of ILD to join the registry for the collection of a natio...

Existing registry technologies such as UDDI can be enhanced to support capabilities for semantic reasoning and inquiry, which subsequently increases its usability range. The Grimoires registry was developed to provide such support through the use of metadata attachments to registry entities. The use of such attachments provides a way for allowing service operators to specify security assertions...

BACKGROUND The National Cardiovascular Data Registry CathPCI Registry was recently linked with longitudinal Centers for Medicare & Medicaid (CMS) claims data. The degree to which this linked cohort is representative of the overall CathPCI Registry and CMS PCI populations is unknown. METHODS AND RESULTS CathPCI Registry records were linked to CMS inpatient claims using indirect identifiers. We...

OBJECTIVE The goal was to develop the Women's Health Registry, a research participant database that prospectively collects detailed information on potential research subjects to assist in linking them with open research protocols and to assess investigator use and satisfaction with this Registry. METHODS The Women's Health Registry was launched in 1999. Women aged > or =18 years were recruite...