BACKGROUND: Although newborn screening for critical congenital heart disease (CCHD) was recommended by the US Health and Human Services Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children to promote early detection, it was deemed by the Secretary of the HHS as not ready for adoption pending an implementation plan from HHS agencies. OBJECTIVE: To develop strategies for...

DISEASE MUTATIONS† Benjamin Liou, Andrzej Kazimierczuk, Min Zhang, C. Ronald Scott, Rashmi S. Hegde and Gregory Grabowski From The Children’s Hospital Research Foundation, Division and Program in Human Genetics, and the Division of Developmental Biology, Cincinnati, Ohio, Department of Pediatrics, University of Cincinnati College of Medicine, University of Washington, School of Medicine, Depart...

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The implementation of managed care for children with special health care needs is often associated with apprehension regarding new barriers to health care services. At times, these barriers may overshadow opportunities for improvement. This statement discusses such opportunities, identifies challenges, and proposes active roles for pediatricians and families to improve managed care for children...