Understanding a care coordination framework, its functions, and its effects on children and families is critical for patients and families themselves, as well as for pediatricians, pediatric medical subspecialists/ surgical specialists, and anyone providing services to children and families. Care coordination is an essential element of a transformed American health care delivery system that emp...

Abstract Background Thalassemia is one of the most common human genetic diseases in the world and it provides many problems for patients, families and health care system. This model helped the family with sick children to empower to face disease and its complications. To reach this aim, the knowledge and attitude of patients and their families about the disease should be increased. This study w...

BACKGROUND Caring for families is fundamental to pediatric nursing. However, existing measures do not capture parents' experiences with family-centered nursing care. OBJECTIVE The aim of this study was to describe the development and initial psychometric testing of the Family-Centered Care Scale, a seven-item instrument designed to measure a parent's experience of nursing care that embodies c...

Objective: to describe the challenges and strategies for implementation of Family-centered Care in the in the care of newborns hospitalized in the Intensive Care Unit from the perspective of nurses. Methods: qualitative study conducted in the Neonatal Intensive Care Unit of a public hospital. Fourteen nurses were interviewed. We used the technique of thematic content analysis. Results the main ...

Allowing long-term care (LTC) residents to make choices about their daily life activities is a central tenet of resident-centered care. This study examined whether staff and family rated care episodes involving choice differently from care episodes not involving choice. Seventeen nurse aide and 15 family participants were shown paired video vignettes of care interactions. Participants were aske...

Background: This study has been conducted to investigate the effect of family-centered support program on satisfaction of the family members of patients in intensive care unit. Hospitalization of patient in intensive care unit causes crisis in family. It is very important to pay attention to the role of patient’s family in support and care of patients in intensive care unit, to pay attent...

OBJECTIVES To examine whether the medical home, care coordination, or family-centered care was associated with less impact of type 1 diabetes mellitus (T1D) on families' work, finances, time, and school attendance. STUDY DESIGN With the 2005 to 2006 National Survey of Children with Special Health Care Needs, we compared impact in children with T1D (n = 583) with that in children with other sp...

Patient- and family-centered care has a long history, but the application of these principles to radiology is limited by infrequent direct patient contact for many radiologists; scarce peer-reviewed data in the radiology literature; and sparse access to implementation strategies, tools, and best practices. In a series of two articles, the authors share two decades of lessons learned from implem...