1. Executive summary 2. Introduction 3. Statement of intent 4. Relationships of the UK Renal Registry 5. The role of the UK Renal Registry for patients 6. The role of the UK Renal Registry for nephrologists 7. The role of the UK Renal Registry for trust managers 8. The role of the UK Renal Registry for commissioning agencies 9. The role of the UK Renal Registry in national quality assurance sch...

1Department of Hematology and Regional Tumor Registry, Lund University Hospital, Lund; 2Department of Hematology and Regional Tumor Registry, Linköping University Hospital, Linköping; 3Center of Hematology and Regional Tumor Registry, Karolinska University Hospital, Stockholm; 4Department of Hematology, Karolinska University Hospital, Huddinge; 5Department of Medicine and Regional Tumor Registr...

multiple sclerosis (ms) is a chronic disease of central nervous system. the multiple sclerosis information system (msis), such as other information system (is), depends on identification, collection and processing of data for producing useful information. lack of the integrated is for collecting standard data causes undesirable effects on exchanging, comparing, and managing. the aim of this stu...

core data fields to include in all neurological registries in Canada. This project targeted neurological registries in Canada for all priority neurological conditions identified in the call for proposal including: Alzheimer’s disease (AD) and other dementias, amyotrophic lateral sclerosis (ALS), brain tumours, cerebral palsy (CP), dystonia, epilepsy, Huntington’s disease (HD), hydrocephalus, mu...

OBJECTIVE The regulation of surgical implants is vital to patient safety, and there is an international drive to establish registries for all implants. Hearing loss is an area of unmet need, and industry is targeting this field with a growing range of surgically implanted hearing devices. Currently, there is no comprehensive UK registry capturing data on these devices; in its absence, it is dif...

OBJECTIVES To examine individual clinic staff members' experiences with using an immunization registry and to compare staff members' perceptions of immunization registries across different provider sites. DESIGN Cross-sectional survey using in-depth interviews and direct observation. SETTINGS The pediatric department of an urban community health center and 2 urban hospital-based pediatric p...