نتایج جستجو برای: rare diseases

تعداد نتایج: 1046714  

Journal: :Archivos de bronconeumologia 2014
Beatriz Lara Gallego Ignacio Abaitua Borda Genaro Galán Gil Diego Castillo Villegas Álvaro Casanova Espinosa Esteban Cano Jiménez Iñigo Ojanguren Arranz Manuel Posada de la Paz

This report describes the general characteristics, objectives and organizational aspects of the registries of rare respiratory diseases included in the National Registry of Rare Diseases of the Research Institute for Rare Diseases (ISCIII), in order to publicize their existence and encourage the participation of professionals. Information is collected on the following conditions: alpha-1 antitr...

Journal: :Anales del sistema sanitario de Navarra 2007
A Avellaneda M Izquierdo J Torrent-Farnell J R Ramón

The concept of Rare Diseases is relatively new. They are those processes "...that can be mortal or to cause a chronic weakening of the patient and who, due to its little prevalence, require combined efforts to treat them. For indicative purposes, a little prevalence is considered when is lesser than 5 cases per 10,000 people in the Community". The existence of these diseases is closely tied wit...

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