Background and aims: Patient advocacy role in nursing is affected by several barriers, such as the lack of nurses’ ethical knowledge about their roles patient advocators. Since this can be learned, these barriers may overcome education through an effective method. The present study aimed to investigate effect ethics on using narration lecture compared a control group. Methods: This quasi-experi...

OBJECTIVE To understand the levels of awareness, usage, and knowledge of biosimilars among patients, caregivers, and the general population in the US and the European Union; perceptions of biosimilars compared to originator biologics; perceived benefits and drawbacks of clinical trials; and whether advocacy groups impact patients' willingness to try a biosimilar. METHODS An international surv...

As called for by Dr David Satcher, former US Surgeon General, pediatricians should be advocates to address both individual and community health issues. Child advocacy represents actions that promote child health and welfare on a population level, distinct from individual-patient advocacy. Pediatricians could advocate by collaborating with community groups to advance child health and updating le...

BACKGROUND Patients are becoming increasingly involved in research which can promote innovation through novel ideas, support patient-centred actions, and facilitate drug development. For rare diseases, registries that collect data from patients can increase knowledge of the disease's natural history, evaluate clinical therapies, monitor drug safety, and measure quality of care. The active parti...

BACKGROUND Pulmonary fibrosis encompasses a group of lung-scarring disorders that occur owing to known or unknown insults and accounts for significant morbidity and mortality. Despite intense investigation spanning decades, much remains to be learned about the natural history, pathophysiology, and biologic mechanisms of disease. PURPOSE To identify the most pressing research needs in the lung...