This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It introduces empirical data and analysis on groups active in four countries (France, Ireland, Portugal, and the UK), and in four condition areas (rare diseases, Alzheimer’s disease, ADHD – A...

HAL is a multi-disciplinary open access archive for the deposit and dissemination of scientific research documents, whether they are published or not. The documents may come from teaching and research institutions in France or abroad, or from public or private research centers. L’archive ouverte pluridisciplinaire HAL, est destinée au dépôt et à la diffusion de documents scientifiques de niveau...

Collective action (CA) research looking at gender has focused predominantly on feminist activism, overlooking activism of women who reinforce inequalities and traditional roles (such as supporting men's rights or anti-abortion protesters). Our addresses this oversight, demonstrating the key role identity content in predicting CA support progressive reactionary social change among women. Using t...

From its inception, the Internet has been touted as a tool for political change. The term “emergent democracy” has been used to describe the new forms of participation that the Internet will facilitate. However, there has been little discussion about how this behaviour will emerge, how to recognise it when it does, and how to integrate it into current models of democracy. This paper traces the ...

In recent years, social media has revolutionized how people communicate and share information. One function of social media, besides connecting with friends, is sharing opinions with others. Micro blogging sites, like Twitter, have often provided an online forum for social activism. When users debate about controversial topics on social media, they typically share different types of evidence to...

The Internet has become the new battle ground between authoritarian regimes and ordinary individuals who want unimpeded access to information. The immense popularity of online activism and citizen journalism enabled by social media has instigated state level players to partially or completely block access to the Internet. In return, individuals and organizations have been employing various anti...

Social media have transformed the way we talk about science. Blogging, in particular, has become popular among scientists of all stripes and has proven to be a useful tool for engaging the public in scientific discourse. Science bloggers have also helped to instill change within academia, highlighting discrimination, misconduct, and gross errors in peer review. But for all the laudable activism...

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