Biobank-based research is not specifically addressed in Indian statutory law and therefore Indian Council for Medical Research guidelines are the primary regulators of biobank research in India. The guidelines allow for broad consent and for any level of identification of specimens. Although privacy is a fundamental right under the Indian Constitution, courts have limited this right when it con...

Privacy is an important concern in any research programme that deals with personal medical data. In recent years, ethics and privacy have become key considerations when conducting any form of scientific research that involves personal data. These issues are now addressed in healthcare professional training programmes. Indeed, ethics, legal frameworks and privacy are often the subject of much co...

The Special Workshop on Information Privacy will consist of a one-day presentation of high-quality research in the area of information privacy. It will include 1) invited papers by scholars from participating schools and 2) submitted papers. The day will include four sessions, each of which will feature two paper presentations by authors and ample time for discussion facilitated by a designated...

One would think that the enactment of the HIPAA, with its mandates on data security and privacy, would have brought a major shift in the security management practices within the US healthcare. Unfortunately, recent industry reports indicate low levels of regulatory compliance, thus raising security concerns for the US health IT infrastructure. This research develops a regulatory compliance mode...

As privacy issues have gained social salience, entrepreneurs have begun to offer privacy enhancing technologies (PETs) and the U.S. has begun to enact privacy legislation. But"privacy"is an ambiguous notion. In the liberal tradition, it is an individualistic value protecting citizens from intrusion into a realm of autonomy. A feminist critique suggests that the social utility of privacy is to e...

The rapid development and extensive use of digital technologies, electronic mail, Internet and mobile communication systems, and electronic commerce applications lead to the collection and processing of huge amounts of personal data. The increasing reliance on the information systems conducts to the selection of security controls, that are driven by the business needs and the associated securit...

To find a balance between learning analytics research and individual privacy a learning analytics project needs to appropriately address privacy and data protection issues and comply with relevant legal regulations. A range of general guidelines, model codes, and principles for appropriate data and privacy protection exist that may serve the consideration of these topics in a learning analytics...

One would think that the enactment of the HIPAA, with its mandates on data security and privacy, would have brought a major shift in the security management practices within the US healthcare. Unfortunately, recent industry reports indicate low levels of regulatory compliance, thus raising security concerns for the US health IT infrastructure. This research develops a regulatory compliance mode...

Association rule mining algorithm provides a means for determining rules and patterns from a large collection of data. However, when two sites want to engage in an association rule mining, data privacy concerns are raised. These concerns include loosing a competitive edge in the market place and breaching privacy laws. Techniques that have addressed this problem are data perturbation and homomo...

The internet is increasingly becoming a standard for both the production and consumption of data while at the same time cyber-crime involving the theft of private data is growing. Therefore in efforts to securely transact in data, privacy and security concerns must be taken into account to ensure that the confidentiality of individuals and entities involved is not compromised, and that the data...