When patients die, bereaved families may be offered support by their local clinicians. Patients recruited into trials are both patients and trial participants. The BRACELET Study considered whether any response for parents of babies who died after enrolment in a neonatal intensive care (NIC) trial might be triggered by a baby’s status as trial participant, at a bereavement follow-up (BFU) appoi...

evaluation of parental satisfaction of nursing care in thalassemic children tavasoli sh1, alhani f2 received: 16 july, 2010 accepted: 25 oct, 2010 abstract background & aims: hospitalization for parents and children causes anxiety. therefore, evaluation of parents' satisfaction concerning their child's nursing care is necessary. observing parental satisfaction is important in determin...

BACKGROUND While the majority of childhood cancer clinical trials are treatment related, additional optional research investigations may be carried out that do not directly impact on treatment. It is essential that these studies are conducted ethically and that the experiences of families participating in these studies are as positive as possible. METHODS A questionnaire study was carried out...

BACKGROUND Parents have a vital influence on the participation of their child with a physical disability. The aim of this study is to gain insight into parents' own daily actions, challenges, and needs while supporting their child with a physical disability at home, at school, and in the community. An additional objective of this study is to refine the preliminary thematic framework previously ...

Three standard psychometric tests were administered to parents who volunteered their children for a randomised, double-blind placebo-controlled trial of a new asthma drug and to a control group of parents whose children were eligible for the trial but had declined the invitation. The trial took place at a children's hospital in Australia. The subjects comprised 68 parents who had volunteered th...

OBJECTIVE To examine the associations of perceived physical environmental factors (availability of physical activity (PA) attributes at home, PA facilities in the neighbourhood, neighbourhood pleasantness and safety) and social environmental factors (parental sports behaviour and parental rule regarding sports participation) with adolescent leisure-time sports participation, and to explore whet...

Background: Parents have high motivation to provide mental health promotion for their adolescents, but cannot treat them effectively due to the lack of knowledge and an organized model to do accordingly. Aim: To evaluate the effect of an educational program based on PRECEDE- PROCEED  Model on adolescents’ mental health and their parents’ participation. Method: The study was a randomized control...

Studies on experts' understanding of the public have mainly focused on the views of scientists. We add to the literature on constructions of the public by analyzing the views of decision-makers, professional science communicators and scientists involved in 'space' communication on the public and public participation in policy. Findings show that contextual situations and roles determine the way...

This paper examines the ways in which parents talk about their participation Early Childhood Education and Care (ECEC), factors that, according to them, promote parental participation. A...