BACKGROUND Nowadays, patient rights, particularly receiving favorable health care based on modern knowledge, informed consent, and privacy, are important issues in health care delivery systems. Organizational learning is considered an important factor influencing health care quality and patient rights. However, there is little evidence regarding this issue. OBJECTIVE The present study was con...

The principal question of this paper is: Why are religious values special in refusal of lifesaving medical treatment? This question is approached through a critical examination of a common kind of refusal of treatment case, one involving a rational adult. The central value cited in defence of honouring such a patient's refusal is autonomy. Once autonomy is isolated from other justificatory fact...

Abstract Data acquisition is a central task in research and one of the largest opportunities for citizen science. Especially urban surveys investigating traffic people flows, extensive manual labor required, occasionally augmented by smartphones. We present DesPat, an app designed to turn wide range low-cost Android phones into privacy-respecting camera-based pedestrian tracking tool automatize...

AI-based data synthesis has seen rapid progress over the last several years and is increasingly recognized for its promise to enable privacy-respecting high-fidelity sharing. This reflected by growing availability of both commercial open-sourced software solutions synthesizing private data. However, despite these recent advances, adequately evaluating quality generated synthetic datasets still ...

Objective: To increase the awareness among at risk relatives of the availability of genetic testing for a familial disorder while respecting their autonomy and privacy. Methods: This was a comparison of preintervention and postintervention cohorts of families carried out in a state wide clinical service providing genetic counselling and testing for people at risk of familial adult onset cancer....