Patient involvement and empowerment through the NPRD (Eastern Europe)

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Patient involvement and empowerment through the NPRD (Eastern Europe)

Patient involvement and empowerment through the National Plans for Rare Disorders (NPRD) (Eastern Europe) We present the current situation of the NPRD from Bulgaria, Romania and Hungary: three different countries confronted with the same problems and limits, and most probably not so different realities. Bulgaria: the NPRD was officially launched on 1 January 2009. The draft for rare diseases an...

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ژورنال

عنوان ژورنال: Orphanet Journal of Rare Diseases

سال: 2010

ISSN: 1750-1172

DOI: 10.1186/1750-1172-5-s1-o32